In my life this week…
POTS
So, this week my GP rang
saying she’d like to see me. I always get a bit worried when this happens but
it turned out to be a rather useful appointment. I’m meant to be referred to an
EDS Gastro specialist in London, but my GP and consultant are arguing about who
it should be to refer me, which is very frustrating. Apart from this though, we
made some progress on a couple of other problems I’ve been having. My GP is
asking my rheumatologist for some advice on how she should treat my osteopenia
(basically I had a bone scan and my bones are thinning too quickly, but because
I’m so young for this to be happening my GP is unsure what to do with me!) She
is also in contact with a urologist to get some advice on another issue, but
the main outcome of the appointment was her referring me to see a cardiologist
because she thinks I may have a condition called POTS (Postural Orthostatic
Tachycardia Syndrome). Along with my diagnosis of EDS-Hypermobility Type, it
would explain a lot of my symptoms, so I’m hoping it will be a positive move
forward. There isn’t a cure unfortunately, but at least it would make sense of
my symptoms.
New make-up
On Wednesday my Mum and
sister took me on a little shopping trip to Reading. We managed to get a
wheelchair on and off the train, which made the shopping trip possible for me
thankfully. I had a little list of things I’d like to look out for in my head
and one of the places I wanted to visit was House of Fraser’s beauty
department. First we headed to the Mac counter, where I purchased the beautiful
Dazzleglass in Extra Amps. It’s so pink and pretty and it smells of vanilla – I’m
in love! After chatting with the lovely people on the Mac counter, we headed
over to John Lewis and the Bobbi Brown counter. A lovely lady, who gave me a
little make over with some of the products I had wanted to try, served me. I
came away with a new colour corrector, concealer and brush – a little more than
I’d planned, but it was all so good! I’ve made a video about the concealers
actually, so watch out on my YouTube channel for that being uploaded!
The seaside!
I have been desperate to
visit the seaside this summer, but finding someone to take me, as well as my
health not playing ball, has meant it hasn’t been possible. However, my
youngest sister needed to go to Bournemouth beach to do some Geography
coursework, and she very kindly said I could tag along if I felt up to it on
the day. So, Friday came and the sun was shining. I didn’t feel great but I was
determined not to miss out on the opportunity to go. I’m so glad I managed it –
the weather was perfect. My Dad wheeled me up and down the promenade and it was
gorgeous having the sea air on my face and seeing the colour spectrum of beach
huts lined up. We even got ourselves some New Forest homemade ice cream, which was
delicious, before heading back home through the New Forest, seeing lots of
adorable ponies.
What has grabbed your attention this
week? I love hearing about people’s new discoveries and you may end up sharing
something that makes it onto my list next week!
Sounds like you had a productive week! I'm glad to hear that you may have some answers about your illness. All the best with it! shopping and the beach sounded like fun! Yay for being able to get out. I hope you have a lovely week.
ReplyDeleteLennae xxx
www.lennae87.wordpress.com
Thank you Leanne you too xx
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